SCD registeries
Submitter:
Dr Catherine Chunda Liyoka
Contact Emails (insert as many as you like):
Organization:
University Teaching Hospitals - Children's Hospital
Country Organization is based:
Zambia
Country Data was collected:
Zambia
SCD Phenotypes being collected:
Bone Pain
Data collected Start Date:
2020-01-17
Data collected End Date (if it exists):
N/A
Frequency of collection (eg: Every 6 months):
Every day
Size of SCD cohort:
4000
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
3 months to 21 years
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
N/A
Research area you might be interested in collaborating with other SCD researchers?:
Sickle Cell Disease, Blood transfusion and Hydroxyurea
Does your ethical approval allow data sharing?:
Yes
Funders:
None at the moment
Name & Surname of a Trainee from your group:
Dr Uzima Chirwa
Do you genotype data for some/or all of your samples?
No
Please add any comments/suggestions/questions:
We do not have a cohort being researched on at the moment
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
Yes