SCD registeries
Submitter:
Dr Emmanuel Asafo-Adjei
Contact Emails (insert as many as you like):
Organization:
Komfo Anokye Teaching Hospital
Country Organization is based:
Ghana
Country Data was collected:
Ghana
SCD Phenotypes being collected:
Vaso-Occlusive Crisis
Data collected Start Date:
2018-01-01
Data collected End Date (if it exists):
N/A
Frequency of collection (eg: Every 6 months):
Every three months
Size of SCD cohort:
3000
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
less than a year to 17 years
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
N/A
Research area you might be interested in collaborating with other SCD researchers?:
Newborn screening, and Clinical Trials
Does your ethical approval allow data sharing?:
No
Funders:
N/A
Name & Surname of a Trainee from your group:
N/A
Do you genotype data for some/or all of your samples?
No
Please add any comments/suggestions/questions:
N/A
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
Yes