SCD registeries
Submitter:
Mr Mario Jonas
Contact Emails (insert as many as you like):
Organization:
SADaCC
Country Organization is based:
Bahrain
Country Data was collected:
Australia
SCD Phenotypes being collected:
Abdominal Vaso-Occlusive Crisis
Data collected Start Date:
2017-08-19
Data collected End Date (if it exists):
2019-01-01
Frequency of collection (eg: Every 6 months):
Weekly
Size of SCD cohort:
750
Size of Controls:
250
Age ranges of cohort (Youngest – Oldest in years):
5 - 47
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
N/A
Research area you might be interested in collaborating with other SCD researchers?:
N/A
Does your ethical approval allow data sharing?:
Yes
Funders:
N/A
Name & Surname of a Trainee from your group:
N/A
Do you genotype data for some/or all of your samples?
No
Please add any comments/suggestions/questions:
N/A
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
N/A