SCD registeries
Submitter:
Mrs Upendo Masamu
Contact Emails (insert as many as you like):
Organization:
Muhas Sickle Cell Program
Country Organization is based:
Tanzania
Country Data was collected:
Tanzania
SCD Phenotypes being collected:
Abdominal Vaso-Occlusive Crisis, Abnormal Echocardiogram, Abnormal Hemoglobin Concentration, Acute Chest Syndrome, Acute Severe Headache, Acute Sickle Cell Crisis, Acutely Severe Anemia, Anemia, Bone Pain, Chest Pain, Chronic Pain, Cough, Fetal Hemoglobin, Fever, Hemoglobin S, Hypertension, Increased Susceptibility to Bacterial Infection, Jaundice, Leg Ulcer, Leukocytosis, Sickle Cell Dactylitis, Sickle Cell Trait, Stroke, Thrombocytopenia, Vaso-Occlusion, Vaso-Occlusive Crisis
Data collected Start Date:
2004-01-01
Data collected End Date (if it exists):
2015-03-31
Frequency of collection (eg: Every 6 months):
3 month
Size of SCD cohort:
5000
Size of Controls:
10000
Age ranges of cohort (Youngest – Oldest in years):
0-49
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
Research area you might be interested in collaborating with other SCD researchers?:
Genomics
Does your ethical approval allow data sharing?:
Yes
Funders:
Wellcome Trust/NIH
Name & Surname of a Trainee from your group:
N/A
Do you genotype data for some/or all of your samples?
Yes
Please add any comments/suggestions/questions:
N/A
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
N/A