SCD registeries
Submitter:
Dr Bamidele Tayo
Contact Emails (insert as many as you like):
Organization:
Loyola University Chicago
Country Organization is based:
United States
Country Data was collected:
Nigeria
SCD Phenotypes being collected:
Sickle Cell Disease-SS
Data collected Start Date:
2012-02-02
Data collected End Date (if it exists):
2015-12-31
Frequency of collection (eg: Every 6 months):
Cross sectional
Size of SCD cohort:
450
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
11 - 64 years
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
N/A
Research area you might be interested in collaborating with other SCD researchers?:
N/A
Does your ethical approval allow data sharing?:
Not Sure
Funders:
N/A
Name & Surname of a Trainee from your group:
N/A
Do you genotype data for some/or all of your samples?
N/A
Please add any comments/suggestions/questions:
I will need to discuss any data sharing/pooling with my co-investigators including our clinical site PI in Africa once detail information is provided on this proposed "SADaCC pooling of SCD data for multi-site retrospective research". Will also need to seek IRB approval before participation in the proposed data pooling.
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
N/A