SCD registeries
Submitter:
Dr Richard Nduwayezu
Contact Emails (insert as many as you like):
Organization:
University of Rwanda- School of Medicine and Pharmacy
Country Organization is based:
Rwanda
Country Data was collected:
Rwanda
SCD Phenotypes being collected:
Sickle Cell Disease-SC
Data collected Start Date:
2004-07-01
Data collected End Date (if it exists):
2006-07-01
Frequency of collection (eg: Every 6 months):
Every day
Size of SCD cohort:
1825
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
0-28 days
Website Link to your dataset:
Key publications around your dataset (links to pubmed):
Research area you might be interested in collaborating with other SCD researchers?:
SCD Newborn screening/sickle Cell trait
Does your ethical approval allow data sharing?:
Not Sure
Funders:
ARES/Belgium
Name & Surname of a Trainee from your group:
Richard Nduwayezu
Do you genotype data for some/or all of your samples?
No
Please add any comments/suggestions/questions:
I would like to know why in my country Rwanda we have very few cases of patients with SCD comparing to our neighboring countries (RDC, Uganda, and Tanzania)
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
Yes