SCD registeries
Submitter:
Dr ANNETTE UWINEZA
Contact Emails (insert as many as you like):
Organization:
University of Rwanda / School of Medicine and Pharmacy
Country Organization is based:
Rwanda
Country Data was collected:
Rwanda
SCD Phenotypes being collected:
Sickle Cell Disease-SC
Data collected Start Date:
2004-07-01
Data collected End Date (if it exists):
2006-07-01
Frequency of collection (eg: Every 6 months):
Every day
Size of SCD cohort:
1825
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
0-28 day
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
Research area you might be interested in collaborating with other SCD researchers?:
SCD newborn screening / sickle cell trait
Does your ethical approval allow data sharing?:
Not Sure
Funders:
ARES/Belgium
Name & Surname of a Trainee from your group:
Dr Richard NDUWAYEZU
Do you genotype data for some/or all of your samples?
No
Please add any comments/suggestions/questions:
N/A
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
Yes