SCD registeries

Submitter:

Mr Nathan Edward Siebu

Contact Emails (insert as many as you like):

Organization:

Sickle Cell Disease Genomics Network of Africa (SickleGenAfrica)

Country Organization is based:

Ghana

Country Data was collected:

Ghana

SCD Phenotypes being collected:

Anemia, Arthritis, Cancer, Sickle Cell Disease-SC, Sickle Cell Disease-SS, Stroke

Data collected Start Date:

2018-08-06

Data collected End Date (if it exists):

N/A

Frequency of collection (eg: Every 6 months):

Daily

Size of SCD cohort:

7000

Size of Controls:

Age ranges of cohort (Youngest – Oldest in years):

1 - 100

Website Link to your dataset:

N/A

Key publications around your dataset (links to pubmed):

N/A

Research area you might be interested in collaborating with other SCD researchers?:

N/A

Does your ethical approval allow data sharing?:

Not Sure

Funders:

NIH

Name & Surname of a Trainee from your group:

N/A

Do you genotype data for some/or all of your samples?

Yes

Please add any comments/suggestions/questions:

N/A

Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:

Maybe