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SCD registeries

Submitter:

Dr Patience Kuona

Contact Emails (insert as many as you like):

patiekuona@gmail.com

Organization:

University of Zimbabwe College of Health Sciences

Country Organization is based:

Zimbabwe

Country Data was collected:

Zimbabwe

SCD Phenotypes being collected:

Acute Sickle Cell Crisis, Asthma, Chronic Complications of Sickle Cell Disease, Failure to Thrive, Fever, Hemiparesis, Hemoglobin S, Hepatomegaly, Hepatosplenomegaly, Hypoxemia, Jaundice, Leukocytosis, Microcytic Anemia, Mild Anemia, Osteomyelitis, Pain, Pallor, Pica, Pneumonia, Respiratory Distress, Severe Anemia, Sickle Cell Chronic Lung Disease, Sickle Cell Dactylitis, Sickle Cell Disease-SS, Sickle Cell Painful Event, Splenic Sequestration, Splenomegaly, Stroke, Vaso-Occlusive Crisis

Data collected Start Date:

2018-01-07

Data collected End Date (if it exists):

N/A

Frequency of collection (eg: Every 6 months):

Every 6 mo

Size of SCD cohort:

120

Size of Controls:

42

Age ranges of cohort (Youngest – Oldest in years):

18-Jan

Website Link to your dataset:

N/A

Key publications around your dataset (links to pubmed):

N/A

Research area you might be interested in collaborating with other SCD researchers?:

Mapping SCD gene in Zimbabwe using stored samples

Does your ethical approval allow data sharing?:

Not Sure

Funders:

PERFECT PROJECT UZCHS funded by NIH

Name & Surname of a Trainee from your group:

Lawson Chikara and Gwen Kandawasvika

Do you genotype data for some/or all of your samples?

No

Please add any comments/suggestions/questions:

N/A

Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:

Yes