SickleInAfrica Consortium

The Sickle In Africa consortium aims to facilitate research in Sickle Cell Disease (SCD) and the subsequent translation of this research into healthcare and health outcomes. Sickle in Africa is made up of three initiatives : Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan-African Research Consortium (SPARCO) and Sickle Cell Pan African Network (SPAN).

SPARCO: Multinational consortium which is coordinated from a hub at the Muhimbili University of Health and Allied Science. SPARCO aims to develop research capacity for SCD through a multidimensional approach which addresses infrastructure, education & training, provision of longitudinal research data and the translation of research into practise.
SADaCC: An administrative, data standardization and coordinating center for Sickle Cell Disease research and infrastructure needs. Its current mandate is to focus on supporting and coordinating data and communications for a partner research network, SPARCO with plans to expand this support to research groups within SPAN in the future.
SPAN: A network of researchers, clinicians, funders and centers working in SCD which aims foster research and infrastructure development.

Standard Operating Procedures (SOPs), Guidelines and Templates

This platform provides Standard Operating Procedures (SOPs), guidelines and policies developed by the Sickle Africa Data Coordinating Center (SADaCC) in collaboration with the Sickle African Pan African Network (SPARCo). SOPs, guidelines and policies help standardize data and procedures at the SPARCo sites in-order to improve data quality and adhere to ethical requirements of the project. A key aspect about this platform is that each member of the SADaCC and SPARCo consortium will be assessed how well they comprehend the SOP, guidelines and policies assigned to their job description before their can commence their duties as well as after every 6 months.

SOPs Booklet & Quizzes

Webinar (Online Event)

Title Date, Time and duration
National Heart Lung Blood Institute (NHLBI) Annual Sickle Cell Disease (SCD) Research Meeting 2020 - Virtual Conference August 10-12, 2020
9:00 AM - 5:00 PM (EDT)
3 days
SCSSN and NSHBT - Virtual Conference Thursday, June 25th, 2020
4:00 pm - 7:00 pm WAT / 11:00 am EST / 08:00 am PST
3 hours
Gene Editing Workshop Thursday, June 18th, 2020
3-7pm CAT, 4-8pm EAT, 9am-1pm EDT, 8am-12pm CDT, 6-10am PDT, 9pm–1am (SGT)
4 hours
Standards of Care developed by SickleInAfrica 29 April 2020
5PM (Tanzania); 4PM (Cape Town); 2PwM (Ghana); 10AM (Washington)
1 hour (5 mins logging in and introductions, 30-40 mins talk, 15 mins discussions)

Upcoming Online Meetings

Title Date of Meeting
Ghana Site Research Concepts Proposals Wednesday, September 22, 2021
Steering Committee Meeting: Zimbabwe Research Concepts Proposals Monday, October 4, 2021
Phase 1 Research - SPARCO CCC Wednesday, October 6, 2021
Nigeria Research Concepts Presentations Tuesday, October 12, 2021

Upcoming External Opportunities

Title Application Deadline Submitted On
The 2nd iteration of the H3ABioNet - OHSU Health Informatics course is now accepting participant applications Wednesday, September 22, 2021 - 00:00 Mon, 09/13/2021 - 07:45
LAUNCH: Institute of Infection, Imperial College London - 4/5 October 2021 Monday, October 4, 2021 - 00:00 Wed, 09/08/2021 - 07:06
ROSA LUXEMBURG-STIFTUNG SCHOLARSHIP TO STUDY IN GERMANY 2021/2022 Friday, October 1, 2021 - 00:00 Tue, 09/07/2021 - 08:33
EpiCrossBorders: a truly International Research School Program Friday, October 15, 2021 - 00:00 Fri, 09/03/2021 - 07:57
EMPOWER Fellowships – Guidelines for Application Thursday, September 30, 2021 - 00:00 Thu, 09/02/2021 - 06:54

External Presentations/Invited Talks

Title Date & Time
Sickle Cell Disease Coalition (SCDC) Wednesday, March 6, 2019 - 16:00