The Standards of Care Working Group was established to develop new standards of care guidelines for sickle cell disease by adapting existing guidelines.
Deliverables:
- Working group meets monthly
- Database of SCD management guidelines
- SCDO Ontology Updated
- Review Methods are in Place
- Common Guidelines for Management of SSA is approved by SC
- Minimum standards for Management of SSA is approved by SC
- mHealth standards of care tool is in place
- Evaluation Report of the mHealth pilot is published
- IRB Approvals are in place
- Evaluation Report of the mHealth pilot is published
- Minimum standards of Guidelines are made available via the internet
- Signed MOUs with the Ministries of Health
- SPAN sites adopting Guidelines
- Online Portal to track changes
Progress:
- Ongoing comparative analyses of existing guidelines
Chair: Professor Kwaku Ohene-Frempong
Members: Prof. Ambroise Wonkam, Dr. Kambe Banda, Jade Hotchkiss, Dr. Victoria Nembaware, Mr. Wilson Mupfururirwa, Prof. Julie Makani, Dr. Irene Minja, Ms. Josephine Mgaya, Dr. Vivian Paintsil, Dr Eunice Agyeman Ahmed, Prof. Obiageli Nnodu, Hezekiah Isa, Prof. Uche Nnebe Agumadu, Boubacari Ali Toure, Dr. Mariam Kanta, Sekou Kene, Dr. Mwashungi Ally, Dr. Agnes Jonathan, Dr. Ruth Namazzi, Dr D. Munube, Prof. Heather Hume, Dr. Pamela Gorejena-Chidawanyika, Dr. Catherine Chunda-Liyoka
Mailing list: sparco_skills_standards_at_lists.uct.ac.za