W. Keith Hoots, MD, Refer to the agenda for the rest of the speakers.
DAY 1 (9:00-5:00 pm)
9:00-9:05 am - Welcome & Housekeeping
SYMPOSIUM 1 (9:05-1:00 pm)
9:05-12:00 pm - Curative Therapies in Sickle Cell Disease
11:00-11:10 am - BREAK
12:00-1:30 pm - BMT for Adults With Sickle Cell Disease: STRIDE Pilot Study
SYMPOSIUM 2 (1:00-5:00 pm)
1:00-2:00 pm - The Role of Cannabinoids in Sickle Cell Disease
2:00-3:30 pm - DBDR-CURE SCD-NIH-GATES Consortium
3:30-5:00 pm - SCDIC Session- Sharon Smith, PhD, Division of Blood Diseases & Resources
3:30-3:45 pm - Overview of the Sickle Cell Disease Implementation Consortium-SCDIC and a Protocol to Improve
ED Care using Individualized Pain Plans
3:45-3:55 pm - Early Findings from the Integration of mHealth into the Care of Patients with Sickle Cell Disease
to Increase Hydroxyurea Utilization (mESH Study)
3:55-4:05 pm - Moving the Needle in Sickle Cell Care: Expert Consensus on What Determines an Unaffiliated
Patient
4:05-4:20 pm - Question & Answer Session
4:20-4:30 pm - Quality of Care Among Adolescents and Adults with SCD in the US
4:30-4:40 pm - Patient Reported Outcomes in the Sickle Cell Disease Implementation Consortium Registry
4:40-4:50 pm - Hydroxyurea is Associated with Miscarriage and Stillbirth
4:50-5:00 pm - Victor Gordeuk, MD, University of Illinois at Chicago
QUESTION AND ANSWER SESSION
ADJOURN
----------------------------------------------------------------------------------
DAY 2 (9:00-5:00 pm)
9:00-9:10 am - Welcome & Housekeeping
SYMPOSIUM 3 (9:00-1:00 pm)
9:10-9:45 am - Fertility and Fertility Preservation for Women With SCD
9:45-10:40 am - Contraception
10:40-11:00 am - Summary Unified - Interactive/Integrated
11:00-11:10 am - BREAK
11:10-12:10 pm - SCD-CARRE
12:10-1:00 pm - Heymolysis & Immune Complications in SCD
1:00-1:10 pm - BREAK
SYMPOSIUM 4 (1:10-5:00 pm)
1:10-2:10 pm - Reviewing the Results
2:10-5:00 pm -SCAPN- Sickle Cell Adult Provider Network
QUESTION AND ANSWER SESSION
ADJOURN
----------------------------------------------------------------------------------
DAY 3 (9:00-4:00 pm)
9:00-9:05 am - WELCOME & HOUSEKEEPING
SYMPOSIUM 5 (9:00-12:00 pm)
9:05-9:35 am - Essential Features of Sickle Cell Centers: Summary of the Evidence & a Consensus
9:35-10:30 am - Essential Features of Sickle Cell Centers: Summary of the Evidence & a Consensus
10:30-10:45 am - BREAK
10:45-11:45 am - Getting Administrative Buy-In & Writing a Business Plan
11:45-12:45 pm - COVID-19 Telemedicine & Re-Imaging the Adult Care Model (TBD)
12:45-1:00 pm - BREAK
SYMPOSIUM 6 (1:00-3:30 pm)
1:00-1:20 pm - ASH Sickle Cell Initiative
1:20-1:40 pm - Quantification of Cerebral Metabolic Rate of Oxygen (CMRO2) in SCD
1:40-2:00 pm - Wednesday Continued
2:00-2:20 pm - Protection Against Vaso-Occlusion With Daily Dosing of HBI-002, a Low Dose Oral Carbon
Monoxide Formulation, In Sickle Cell Disease Mouse Models
2:20-2:30 pm - The Many Facets of KYC for Improving Vascular Function in SCD
2:30-4:00 pm - Session
2:30-2:45 pm - Ketamine and Novel Approached to Pain Management in the Sickle Cell Patient With Acute Pain
2:45-3:00 pm - Ketamine and Novel Approached to Pain Management in the Sickle Cell Patient With Acute Pain
3:00-3:15 pm - Intensive Training Program for Multidisciplinary Health Providers in Adult Sickle Cell Disease
3:15-3:30 pm - Novel Laboratory Techniques To Determine Red Cell Health And Complication Risk In Patients
Receiving Experimental Therapy
3:30-3:45 pm - Iron Dysregulation in Sickle Cell Disease and its Clinical Effects and Management
3:45-4:00 pm - QUESTION AND ANSWER SESSION
CONFERENCE ADJOURNMENT
| Attachment | Size |
|---|---|
 Drug Costs in SCD NHLBI.pdf | 146.19 KB |
| Hoots Mondoro Cure SCD August 2020 .pdf | 1.71 MB |
| NHLBI meeting Aug 2020 final 20200806 V1 (2).pdf | 988.75 KB |
| NHLBI Presentation - Bozzo - Institutional Buy-In 8-12-20.pdf | 772.07 KB |
| 1 SCD Agenda Banner.pdf | 324.49 KB |
| SCD Research 2020 Virtual Meeting Participants List.pdf | 275.38 KB |
Please click the link below to join the webinar:
https://nih.zoomgov.com/j/1613068291?pwd=WlVhSWVReE4yN1VNeHI3QTRaemVUUT09
Password: 1234
Or iPhone one-tap :
US: +16692545252,,1613068291#,,,,0#,,1234# or +16468287666,,1613068291#,,,,0#,,1234#
Or Telephone:
Dial(for higher quality, dial a number based on your current location):
US: +1 669 254 5252 or +1 646 828 7666
Webinar ID: 161 306 8291
Password: 1234
International numbers available: https://nih.zoomgov.com/u/arb4pKfMg
Or an H.323/SIP room system:
H.323: 161.199.138.10 (US West) or 161.199.136.10 (US East)
Meeting ID: 161 306 8291
Password: 1234
SIP: 1613068291@sip.zoomgov.com
Password: 1234
Thank you.
NIH-NHLBI/DBDR SCD Research Meeting Planning Team