Standards of Care

The Standards of Care Working Group was established to develop new standards of care guidelines for sickle cell disease by adapting existing guidelines. 
 
Deliverables:

  • Working group meets monthly
  • Database of SCD management guidelines
  • SCDO Ontology Updated
  • Review Methods are in Place
  • Common Guidelines for Management of SSA is approved by SC
  • Minimum standards for Management of SSA is approved by SC
  • mHealth standards of care tool is in place
  • Evaluation Report of the mHealth pilot is published
  • IRB Approvals are in place
  • Evaluation Report of the mHealth pilot is published
  • Minimum standards of Guidelines are made available via the internet
  • Signed MOUs with the Ministries of Health
  • SPAN sites adopting Guidelines 
  • Online Portal to track changes

Progress: 

  • Ongoing comparative analyses of existing guidelines 

Chair: Professor Kwaku Ohene-Frempong

Members: Prof Isa Albarka, Prof Alex Osei-Akoto, Prof Ambroise Wonkam, Mr Anazoeze Madu, Mr Daniel Kandonga, Dr Emmanuel Balandya, Mr Frank Makundi, Dr Gaston Kuzamunu, Dr Jill Kent, Prof Julie Makani, Mr Mario Jonas, Prof Obiageli Nnodu, Dr Vivian Paintsil, Dr Victoria Nembaware

Mailing list: sparco_skills_standards_at_lists.uct.ac.za